| About the fund
Founded in 2004, the International Retinoblastoma
Daisy Fund (IRDF) is named after Daisy
Lloyd,a child from the United Kingdom diagnosed with
a rare type of eye cancer.
Daisy required specialized treatment at the
Hospital for Sick Children (SickKids) in Toronto, Canada, that was unavailable
at home. Daisy's parents
established The Daisy Fund to help raise funds to cover costs when she
traveled from the United Kingdom to Canada.
In October 2004, in Botswana (southern
Africa) a young girl named Gorata (Rati)
had a rare recurrence of retinoblastoma.
The family of this little 3 year-old girl was given little hope
of effective treatment in Botswana. At this point, we established
the International Retinoblastoma Daisy Fund in Canada and the United
Kingdom.
Thanks to the IRDF, Rati and her family were able to travel from
her home in Francistown to SickKids to receive medical care. To date, we
have assisted children across four contine nts
- Europe, North America, Asia, and Africa.
The IRDF mission is to facilitate
optimal care for all children diagnosed
with retinoblastoma. We support diverse projects that will achieve
this goal.
Our strength is the
worldwide collaboration of health care professionals, parent
and patients, scientists and other persons concerned about retinoblastoma.
Our
projects include research in global retinoblastoma,
multi-center rigorous clinical trials to advance therapy and
co-ordination of access for children to the most appropriate
medical centre that can provide the needed care, closest to
where the family lives. Our long-term goal is to achieve sustainable, locally-administered
diagnosis and treatment programs for retinoblastoma, optimized
for diverse parts of the world.
The IRDF is an independent charity in England (Registered Charity
Number: 111-11-33), and a designated fund within the Charitable
Foundation of Toronto's Hospital for Sick Children (Charitable
Business Number: 10808-4419- RR0001) |